Comments on: The Pain of it All

By: yvonne verbeek

yvonne verbeek — Sat, 28 Mar 2009 03:41:09 +0000

Hello,
I wás a women with endometriosis.
I say wás, because of a treatment, that in fact was wrong, but did something very good to me.
I have used a drug for over 2 years, in an overdosis. I don’t know the name of the drug, but it was a drug, that by taking a hormone completely blocked my periods.
I took about 20 days 2 pils, and then for the rest of the 2 years 1 pil a day.
The drug was extremely expensive, because ten pils would cost 250,- gilders (about 120,- euro’s), and that was 28 years ago.
Because of me moving to an other city, and going to a different gyneacologist, I found out, that I have had an overdosis. I in fact only was alowed to take 1 pil for over 10 days, ore something like that. I have had a huge amount of it in those 2 years.
My new gyneacologist made me stop inmediately.
After that time, I did not have any endometriosis complaints.
By the way; later I was also diagnosed with PCOS with no activery what so ever, and an uterus in the form of a hart (1 1/2 uterus) from wich the ovary which – after a furtility treatment with hormones – did not give eggs at the same moment every month, and some other fysical problems, and still have maneged to have to beatifull kids in the end!
So don’t give up hope people!!!

By: Salanie

Salanie — Wed, 18 Mar 2009 00:02:48 +0000

Oh my GOOOSH!
I feel your pain. There are times when I have to buckle. Its like a piece of metal drilling into my womb. Just reading yours made me wince.

Thank you so much.
I’m due for the larposcopy. I’m trying ot conceive. I think when I first talked ot doc. about it there was not so much information then. When I described mentruation, she said it was normal. I was taking meds. to jump start my period. Honestly, I would cry on the second day of my period. Someone(BF) had to sleep the entire night pressing his head or shoulder into my womb.These days its better. But the pain…it simply envelopes and controls me. I have to grab something and squeeze or try to push like when women are giving birth. I think that last act lowers my womb becasue of the force I exert on myself.

Than kyou so much for this article.

By: Kristin

Kristin — Thu, 07 Aug 2008 02:33:29 +0000

Thank you for this article, “The Pain of it All”.

I have suffered with endometriosis for years and I also have PCOS. Matter of fact, it was during my second laproscopic procedure that PCOS was confirmed.

I smiled with great empathy for the story described while shopping. I wish I had a dollar for every time I was training and the pain would jolt me tumbled over or throw my body in a different direction than my feet were facing. I wish I had a nickel for everytime I am on the phone with a client and literally am moving my mouth expecting words to come out but the pain that shots across my abdomen has stolen the breath I was taking along with my vocal chords; or a dime for every time I am just walking or even trying to get up from a chair (this one makes me laugh, after I recover) and my body throws this rubber band feeling in my abdomen that literally jolts my body back and forth for a quick moment.

Wouldn’t it be great if we could take all of these “involuntary moves” and create the next Broadway Musical? We would have the best dance moves to rock this nation. I am thinking the rubber band move could be the next step rocking our teen population.

Some of my recoveries- “practicing for Broadway”, “just wrapping up a mime (sp) class and this is part of my practicum”, and “just dropped the phone, be right there”.

Sometimes, I just tell folks, whether or not I know them well, that I have Endometriosis and every so often it likes to give me a kick or a jolt to just say ‘hi’; remind me it is still there; etc. This approach has actually provided learning opportunities for those who have not heard of it before and also has provided me with the opportunity to hear someone else’s story… wow, is it nice to know that I am not alone.

By: Maryann

Maryann — Wed, 07 May 2008 22:40:58 +0000

Thanks for this information. My doctor’s appointment got pushed back a week this morning and I’m going to discuss the possibilities of both PCOS and endometriosis with him. I was already FREAKING OUT over the endo symptoms so that extra week seemed like an eternity. I came online to find out if there could be a link between PCOS and endo (it seemed quite likely) and now, knowing that there certainly can be, I feel substantially better about having to wait a few more days.

Thank you again.